Gone

Aaron went to be with the Lord May 11, 2016.  This picture is of Aaron's baptism when Michael and I vowed to raise Aaron as a Christian and to know God. In Aaron's final days, he very much enjoyed me reading the Bible to him. He would ask questions and we had great discussions.

Aaron had a few true loves in life: his Mom, his Papa, trains, cooking and his puppies.  Aaron left the earth surrounded by everything he loved.  Michael and I held him in our arms until he took his last breath and his heart stopped beating.  He had his trains playing and held onto his Pupster.  He passed quickly.  It was just the three of us which is what he would have wanted.

Aaron was cremated. Some of his ashes are in a train urn. The rest Michael spread over the train yard where we spent countless hours watching trains. Michael said that there were more trains than he has ever seen at the train yard after Aaron passed.

We miss him like crazy.  We know he is all around us and will never be forgotten.  As he was leaving, I told him to go chase the trains.  I will never be able to hear a train without thinking of my baby in heaven.

We will not be having a memorial service.  We are making a memory book and would like more than anything for everyone to submit fun stories of Aaron.  Please remember him as the funny, happy, stubborn, passionate and intelligent person he was.  He was not defined by his illness. He did not lose any battles.  He lived!  He accomplished more in six years than some do in a lifetime.  He spent every day doing what he loved. His life was not easy, but he did everything asked of him.  He was a happy kid and full of laughter.  We are so very proud of Aaron.

The pain in my heart is present, but I feel less pain now.  Seeing Aaron suffer the last few months was more painful than letting him go. He is free now. He is happy. He is home.



Memory book. Submit to:
Gretchenerose@aol.com
Or
Kterose@aol.com

I will let everyone know when it is available to order.  The more stories the better.  Everyone asks what they can do for me. This is it. Take a few moments to recount the fun times and the moving moments so I can recount them for the rest of my life.

Ventilated

Aaron continues to decline. He was intubated last night and put on a ventilator. The regular ventilator was not helping and they had to use an oscillator type to ventilate him. They are also talking about dialysis again.

Aaron is in good hands and hopefully is getting the rest his body needs. This is the third time he has been intubated and ventilated. I have learned it is a long slow process. There probably won't be much to update for awhile.

He is surrounded by his doggies and I have trains playing on the iPad. I read him books and hold his hand. My love.

Memory book please read

Aaron has been transferred to the ICU again. His breathing continues to decline. He has been put back on the high flow at a high setting with no success. His chest X-ray shows likely pneumonia. This is actually very good news. If Aaron has an infection, he has hope of recovering. If Aaron does not have an infection, there is very little left to help him. He is weak and tired but still fights the nurses. The doctor told him he couldn't drink anything and he let her have it. He is not going to back down and I am so proud of him. He finally got his way and is allowed to drink.

Aaron may have days, weeks, months or years left. I have had overwhelming support and prayers.  I want to ask a favor of anyone who feels Aaron has touched their lives. I want to put together a memory book. I would love you to write something about Aaron. Anything. I especially love how funny he is and the funny things he says. Feel free to write multiple things. Please include pictures  that moved you. I have pictures on

Facebook
Www.wolseyandrose.blogspot.com
Www.aaronwolsey.blogspot.com

I would like this book to be a positive book. Aaron has not and never will lose any "battles" with disease or illness. Aaron has won at life. He is happy. He knows God and he spends everyday doing what he is passionate about. He should not be pitied. He is an amazing child. If his life is short that is because he has fulfilled His purpose.

My sister and sister-in-law will be putting this together. When it is done, I would be happy to give you the information on how to order one. Please send all your memories to

Katie Rose
Kterose@aol.com
(520) 661-6697

Or

Gretchen Rosewolf
gretchenerose@aol.com
(509) 844-1213

Thank you!  And I appreciate each and every text, message, and phone call you have sent me in thought prayer and encouragement. I apologize that I rarely answer phone calls. It is too hard to talk about and each time I have to tell tell someone that Aaron is not well is like reopening a painful wound. I am better with text.

Please also pass this blog post on to anyone who may want to contribute.

Still struggling

Aaron has been out of the ICU for a week now. He has still been struggling with breathing and almost went back to the ICU. He is putting on weight at a scary rate. His weight gain has made it so he can hardly walk at all. He stands for about five minutes and goes into respiratory distress. Overall,  Aaron is not better and things are not good. His sores do not heal.

I try to focus on the good times. Aaron still has laughter and some happiness. My heart hurts for him, but nothing is better in this whole world than the sound of his laughter.

I feel like my hope in medicine has left me. I can only lean on faith.

“Trust in the Lord with all thine heart; and lean not unto thine own understanding. In all thy ways acknowledge him, and he shall direct thy paths.”
‭‭Proverbs‬ ‭3:5-6‬ ‭KJV‬‬