The Amazing Kid Named Aaron

Sleeping better than he has in his life

I have no choice but to brag and give thanks!

The last few months have been rough. Aaron has been in and out of the hospital too many times to count. Three blood infections. Two surgeries and a new central line. Many, many fevers. And sores that ooze and bleed and cause a great deal of anxiety and pain. The sores are scary. Either they will heal or they won't. If they don't heal, the outcome is not good. Right now the sores are stable (which means they are bad but not worse). We went on a pass today to the museum and I looked down at Aaron and his shirt is soaked in blood and dripping blood. The slightest touch can cause a new tear and bleeding.

When we got back to the hospital, Aaron did not want to get in bed. He walked all around the room. He was moving pictures around on his wall. Then he turned on Pandora and started dancing. He had his doggies dancing. I told him I had to wash his bloody clothes. He insisted on coming with me and refused to let me carry him at all. The walk from the room to the laundry is outside the unit and a good lenghthed walk. Then he walked the whole way back. He even teased me and purposely went the wrong way. After we got back to the room, he engaged in a full on conversation with the PCA. Anyone who knows Aaron knows that a scream and "go away" is about the best you get from him. Not today. He told the PCA all about his sister, each of his dogs, how he has an appetite from walking and on and on. I am having flash backs to when he was two and ran a mile a day saying "I can't stop! I can't stop!"

Aaron's little body is so broken and worn yet he perseveres like no other. He speaks his mind wether you like it or not and is stubborn as hell. God made this child strong. Just when I started to lose hope, Aaron renewed my strength.

Dancing with Squeaky Cheese (big dog)